National. 10 Regions. Founded 1981. Council of the Arthritis Foundation devoted to serving the special needs of children, teens and young adults with childhood rheumatic diseases (including juvenile rheumatoid arthritis, systemic lupus erythematosus and ankylosing spondylitis) and their families. Provides information, advocacy, educational materials, programs and conferences. Offers online support and local chapter locator. Membership $20/yr. (for Arthritis Fdn).
Juvenile Arthritis Alliance
1330 W. Peachtree St., Ste 100
Atlanta, GA 30309
Voice: 404-872-7100 ext. 7538
International network. 25 affiliated groups. Founded 1983. Support, research, advocacy and education for patients, families, friends and health professionals concerned with ankylosing spondylitis and related diseases e.g.: (reactive arthritis/Reiter's syndrome, psoriatic arthritis, and inflammatory bowel disease). Publications, videotapes and newsletter. Guidelines available to start support groups.
Spondylitis Association of America
P.O. Box 5872
Sherman Oaks, CA 91413
Voice: 1-800-777-8189 or 818-892-1616
Online. 6153 members. Support and information for persons with ankylosing spondylitis and related disorders. Provides inspiration, friendship and humor. Message board. Separate forums for affected persons, families, friends and affected teens.
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