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Scleroderma

Important
It is possible that the main title of the report Scleroderma is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

Progressive Systemic Sclerosis
PSS
Sclerosis, Familial Progressive Systemic
Systemic Sclerosis

Disorder Subdivisions

Morphea
Linear Scleroderma
CREST Syndrome

General Discussion

Scleroderma is a rare autoimmune connective tissue disorder characterized by abnormal thickening of the skin. Connective tissue is composed of collagen, which supports and binds other body tissues. There are several types of scleroderma. Some types affect certain, specific parts of the body, while other types can affect the whole body and internal organs (systemic). Scleroderma is also known as progressive systemic sclerosis. The exact cause of scleroderma is unknown.

Resources

Scleroderma Research Foundation
220 Montgomery Street
Suite 1411
San Francisco, CA 94104
USA
Tel: 4158349444
Fax: 4158349177
Tel: 8004412873
Email: info@sclerodermaRESEARCH.org
Internet: http://www.srfcure.org

Scleroderma Foundation
12 Kent Way, Suite 101 Byfield, MA 01922
Byfield, MA 01922
USA
Tel: 9784635843
Fax: 9784635809
Tel: 8007224673
Email: sfinfo@sceroderma.org
Internet: http://www.scleroderma.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021-2227
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: 3014954484
Fax: 3017186366
Tel: 8772264267
TDD: 3015652966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov

Juvenile Scleroderma Network, Inc.
1204 W. 13th St
San Pedro, CA 90731
USA
Tel: 3105199511
Fax: 3105199511
Tel: 8663385892
Email: jsdinfo@jsdn.org
Internet: http://www.jsdn.org

National Registry for Childhood Onset Scleroderma
726 South BST, 3500 Terrace St.
University of Pittsburgh
Pittsburgh, PA 15261
USA
Tel: 4123838674
Fax: 4126489643
Tel: 8006038960
Email: jablonj@msx.dept-med.pitt.edu
Internet: http://www.arthritis.pitt.edu

Lupus Society of Alberta
Suite 200, 1301 - 8 St. SW
Calgary, AB, T2R 1B7
Canada
Tel: 403-228-7956
Fax: 403-228-78533
Tel: 888-242-9182
Email: lupuslsa@shaw.ca
Internet: www.lupus.ab.ca

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)262-0450
Fax: (732)262-0450
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435
Tel: (952)831-3091
Tel: (800)564-7099
Email: site-inquiries@sclero.org
Internet: http://www.sclero.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Esther de Vries
Jeroen Bosch Hospital
Dept. Paediatrics
P.O. Box 90153
Hertogenbosch, 5200 ME's
Netherlands
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

AutoImmunity Community

Tel: (919)-55-2-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated: 7/23/2007
Copyright 1986, 1987, 1988, 1990, 1992, 1993, 1996, 1997, 1998, 2000, 2002, 2003, 2004, 2006, 2007 National Organization for Rare Disorders, Inc.

WebMD Medical Reference from the National Organization of Rare Disorders

Last Updated: July 23, 2007

This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.