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Tools & Resources

Scleroderma

Scleroderma Foundation

National. 23 chapters, 170 affiliated groups. Founded 1998. Dedicated to providing emotional support to people with scleroderma, their families and caregivers. Sponsors scleroderma education and public awareness events and funds research. Referrals to local support groups and physicians. Advocacy program and annual conference. Online message board. Dues $25/yr.
Write:
Scleroderma Foundation
300 Rosewood Dr., Suite 105
Danvers, MA 01923
Voice: 1-800-722-4673 or 978-463-5843 (Mon.-Fri., 8:30am-5pm EST)
Fax: 978-463-5809
Website: http://www.scleroderma.org
E-mail: sfinfo@scleroderma.org
Verified: 9/21/2011

Scleroderma Research Foundation

National. Founded 1987. Mission is to find a cure for scleroderma by funding and facilitating the most promising research. Provides scleroderma information online and via 'Insights' scleroderma newsletter.
Write:
Scleroderma Research Foundation
220 Montgomery St., Suite 1411
San Francisco, CA 94104
Voice: 1-800-441-2873
Fax: 415-834-9177
Website: http://www.sclerodermaresearch.org
E-mail: info@sclerodermaresearch.org
Verified: 4/1/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.