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Sjögren's Syndrome - Other Places To Get Help

Organizations

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD  20824
Phone: 1-800-352-9424
(301) 496-5751
TDD: (301) 468-5981
Web Address: www.ninds.nih.gov
 

The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It also provides the public with educational materials and information about these disorders.


American Academy of Ophthalmology (AAO)
P.O. Box 7424
San Francisco, CA  94120-7424
Phone: (415) 561-8500
Fax: (415) 561-8533
Web Address: www.aao.org
 

The American Academy of Ophthalmology (AAO) is an association of medical eye doctors. It provides general information and brochures on eye conditions and diseases and low-vision resources and services. The AAO is not able to answer questions about specific medical problems or conditions.


American Autoimmune Related Diseases Association (AARDA)
22100 Gratiot Avenue
East Detroit, MI  48021
Phone: (586) 776-3900
E-mail: aarda@aol.com
Web Address: http://www.aarda.org
 

This national nonprofit health agency is dedicated to curing autoimmune diseases and relieving the suffering and the economic and social impact of autoimmune diseases. AARDA brings professionals together in the areas of education, research, and patient services, and sponsors physicians' conferences, research, legislative advocacy, and a national awareness campaign.


American College of Rheumatology
1800 Century Place
Suite 250
Atlanta, GA  30345
Phone: (404) 633-3777
Fax: (404) 633-1870
Web Address: www.rheumatology.org
 

The American College of Rheumatology (ACR) and the Association of Rheumatology Health Professionals (ARHP, a division of ACR) are professional organizations of rheumatologists and associated health professionals who are dedicated to healing, preventing disability from, and curing the more than 100 types of arthritis and related disabling and sometimes fatal disorders of the joints, muscles, and bones. Members of the ACR are physicians; members of the ARHP include research scientists, nurses, physical and occupational therapists, psychologists, and social workers. Both the ACR and the ARHP provide professional education for their members.

The ACR Web site offers patient information fact sheets about care professionals and rheumatic diseases.


National Eye Institute, National Institutes of Health
Information Office
31 Center Drive MSC 2510
Bethesda, MD  20892-2510
Phone: (301) 496-5248
E-mail: 2020@nei.nih.gov
Web Address: www.nei.nih.gov
 

As part of the U.S. National Institutes of Health, the National Eye Institute provides information on eye diseases and vision research. Publications are available to the public at no charge. The Web site includes links to various information resources.


Sjögren's Syndrome Clinic
National Institute of Dental and Craniofacial Research, National Institutes of Health
Bethesda, MD  20892-2190
Phone: (301) 402-7364
Fax: (301) 480-4098
E-mail: nidcrinfo@mail.nih.gov
Web Address: http://www.nidcr.nih.gov/Research/Intramural/GeneTherapy/SjogrensSyndrome/SjogrensSyndromeClinic.htm
 

This clinic conducts basic and clinical research on salivary function and Sjögren’s syndrome and is located in the Gene Therapy and Therapeutics Branch (GTTB), National Institute of Dental and Craniofacial Research (NIDCR), National Institutes of Health (NIH) at the Warren Grant Magnusson Clinical Center in Bethesda, Maryland.


Sjögren's Syndrome Foundation
8120 Woodmont Avenue
Suite 530
Bethesda, MD  20814
Phone: 1-800-475-6473
Fax: (301) 718-0322
Web Address: http://www.sjogrens.com
 

This nonprofit foundation educates both health professionals and people with Sjögren's syndrome about the disease, and produces and distributes educational materials, including the Moisture Seekers newsletter, handbooks, videos, and medical articles. A network of chapters, support groups, and contacts organizes meetings, participates in health fairs, increases awareness in their community, and promotes local media campaigns. The foundation sponsors educational programs, symposia, and workshops; provides physician and dentist referrals; and advocates for research and treatment centers.


WebMD Medical Reference from Healthwise

Last Updated: May 18, 2006
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.
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